We’d like to recognise the steadfast support which Ben Lake MP has provided to people affected by genetic haemochromatosis, the UK’s most common undiagnosed genetic condition.
The condition is especially prevalent in Wales.
Genetic Haemochromatosis causes people to develop iron overload. This, in turn can lead to cancer, liver disease, heart problems, diabetes and mental health issues.
Ben Lake is Vice-Chair of the All-Party Parliamentary Group on Genetic Haemochromatosis at Westminster, which regularly engages with ministers to improve NHS care. His work over recent years has been instrumental in helping us raise the patient voice with policymakers and elected representatives nationally.
Ben Lake’s quiet, behind-the-scenes advocacy has provided renewed hope for the thousands of people struggling with poor NHS care for iron overload.
Yours sincerely,
Neil McClements
Chief Executive, Haemochromatosis UK
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